Today was rougher than yesterday for Serenity. We’d originally hoped she might go home today, but she has had a fever for most of the day even with the Tylenol. She has also thrown up several times; up until now she has complained of nausea regularly but not actually thrown up. It is the saddest thing to see. She isn’t eating so it’s just bile and medicine. It’s hard when she is feverish and I want her to have the Tylenol (because it sometimes works), but I’m afraid to give her anything for fear she will throw up.
I haven’t been out of the ward for 48 hours. I was able to sneak in a shower for which I was grateful. When she falls asleep tonight I will slip down to the cafeteria for something to eat. Today’s food has consisted of a bagel and cinnamon bears.
I’m a little bit worried that she isn’t eating (because of the ordeal with Taran, who had to have a PICC line put in and be put on TPN) but she is still nursing so maybe we are ok. She nursed quite a bit yesterday and this morning. This afternoon and evening just a bit because she was feeling so nauseated. We are still awaiting the C diff results but her diarrhea is back in full force & she cries when I change her diaper (which is frequently).
She is done with her Ara-C, which might be the cause of the fevers, and she only has 1 day left of her thioguanine, and then 2 weeks without chemo or steroids, if I’m remembering correctly.