Serenity has been feeling pretty good, aside from throwing up every once in awhile (for no apparent reason).
Today we had a clinic visit and her spots are back yet again! It is possible to scrape one of the lesions and test for varicella (chicken pox) but none of hers looked especially “juicy” and since she has already had a course of the acyclovir the doctor decided to keep holding her chemo and see what happens in the next few days. She did get her vincristine today, but hasn’t had methotrexate or 6MP since this all started, and he is particularly leery of putting her back on the steroids if she is fighting something. (She was due to start steroids today.) So the plan was to wait and see and check with the clinic Monday.
Serenity got a huge stocking at the hospital today, filled with candy, a Barbie, art supplies, and all kinds of other goodies. The stockings had been donated by students in the University engineering department. She also got a new hat, and received so many compliments on it! We think she looks especially adorable in it.
We were in and out very quickly but did get a call when her labs came back that her ANC is 0.1 (very low). It means she is very susceptible to illness right now. So instead of resuming treatment on Monday, she will be getting another CBC and then decide what to do.
Her appetite hasn’t been much this past week. She weighs the same that she did last month, and her weight for height is good, but the dietitian did want to speak to us because she would like to see her weight trending upward over time and instead it has been constant.
I’m a teensy bit nervous about her getting hospitalized during the holidays, and the day after Phil and the 3 kids are going on a 5 day camping trip. So think positive thoughts for us! 😉
I love, love, love that first picture of her! I’m sorry things are still so confusing w/ the chicken pox/not chicken pox saga. And that ANC – ick.
love,
Oh my gosh that hat is adorable!! I do hope you’re able to have a quiet, healthy Christmas.
I love that hat on her – she looks just like she has pigtails. I hope her ANC starts looking better. But if you end up needing help over the holidays let us know.
The new hat is totally adorable on her 🙂 I hope the docs figure out what is going on with the chicken pox / weird rash/ whatever it is – hope you can avoid any hospital stuff over the holidays!!!
We’ve got good thought coming your way! It was so fun to finally meet you guys. Brinley’s at the same ANC as Serenity, we have a CBC scheduled for Monday too, so hopefully the will both start to recover. I hate when counts are that low, it’s scary. Sorry about all the vomiting, that is probably so hard for you guys as well as Serenity. She looks sooo cute in that hat! Have a wonderful, hospital free Christmas (there are those good thoughts!)