Well it looks like we will be here for a few days. Serenity’s fever came back last night (103 degrees) and Tylenol isn’t having much of an impact on it. She alternates between feeling energetic and cheerful and being lethargic and cross. She spent a long time crying last night because she wants to go home, or at the very least leave the room.
She can’t leave because they are waiting for results to come back on her C diff test. I believe she was tested a week and a half ago and it came back negative, so I don’t expect that she has it but until the results are back we are quarantined & the doctors and nurses put on masks and gowns to come in and check on her. We’re in the Immune Compromised ward so the room is already cleaned & dusted carefully once a day but because of the possibility of Clostridium difficile our room is also wiped down with bleach at the beginning of every shift change.
She only has 3 days left of chemo in this phase of Delayed Intensification but according to the doctors her ANC will likely plummet more & so she needs to be here until she’s gone about 48 hours without a fever.
Serenity is in my continued prayers.
What happens after Delayed Intensification? Is there light at the end of the tunnel?
yuck. that sounds like no fun at all. is there anything that would make the day go faster? anything we could drop by for her (or you?). love, love.
Kimberlee – Thank you. They mean the world to me.
Vicki – The next phase is long term maintenance. It’s supposed to be the easiest, where life is relatively normal. I believe she will only go to the clinic once a month, although she will still get oral chemo every day at home.
Amanda – will you already be in the area? She would love something to do besides color…stickers, a balloon, some kind of craft. I haven’t been able to get ahold of Child Life but will try again tomorrow.