Mostly, we are finding our new normal around here.

Serenity sometimes takes her medicine without fighting. Mondays are clinic day, and on Tuesdays she will feel yucky from the chemo. I’ve become accustomed to Serenity sleeping a lot, and instead of holding her the entire time – although that is my preference! – when she’s asleep I try and pick up the house and do some laundry.

When Serenity asks for something, most of the time we can interpret what she wants. We know how to time her medications so that she won’t throw up (mostly), and how much activity she can tolerate during the day before she crashes.

Her hair is starting to fall out. I didn’t expect it to happen this early, and in fact I just placed an order for some cute hairbows earlier this week. She is sometimes mistaken for a boy, so I was looking forward to decorating her hair with these cute girly bows, which is so unlike me. Or maybe on some level I was fighting against what I know is coming. Trying to pretend that our life isn’t the way it is.

Serenity is eating fairly well. Some days she barely touches her food, other days she will eat 2 eggs and 2 bowls of cereal all in one sitting.

We have taken her out a few times these past few days. If we are out of doors and don’t let her get too close to others, it is pretty safe and she seems to enjoy being out of the house. Today she spent all morning in the Kelty backpack while we took some of the kids to an outdoor festival. She had a few periods of crying; overall I think she had fun. She only has one more week of steroids, and then she gets a week off, so I am looking forward to that for her.