Serenity is doing well. I haven’t updated here regularly and I’m feeling guilty about that. There was some drama with our new insurance and getting authorization for her to have Home Health do blood draws at home, and then some more drama with getting them to pay for one of her prescriptions. Both instances involved many phone calls and more than a few tears but everything worked out in the end.
We go back to the clinic next week for her monthly visit. Right now she is on 75% chemo and feeling pretty good. She was very tired yesterday and fell asleep in my arms at lunch, which is unusual for her. Anything unusual makes me worry but today she is running around and acting fine, so hopefully she’s not teetering on the brink of any illness.
No news is good news, right?!
I just found your blog and have read through it. I’m a young adult with a rare blood cancer that has been treated with many of the same medications. I’m also a nursing student, so it was very interesting to read about your daughter. This is the post that makes me most upset. I’m from Canada, and I have never thought about treatments that would or would not be covered. Home care is always covered for blood draws and so are medications. I just can not imagine thinking about finances in the face of this! I’m praying for your family!