We took the twins in for shots today and to get Taran’s blood redrawn. The poor little kids; they were not very happy at all. It was really sad to see. After the doctor’s visit we dropped them off at Phil’s mom’s house and took Serenity up to Primary Children’s.
It was really crowded today and we waited awhile to get seen. She weighed 12.2 kilos but I’m afraid I haven’t noticed what she was before, so I don’t know whether she gained or lost. There was a mom in the waiting room who came back after her son weighed in and announced, “He lost weight again.” Several of us gave her this look of understanding and a few said they were sorry. I thought again how odd it is to be a part of the cancer club, to know the worry and fears behind that sentence.
Because it was so crowded there wasn’t a room for us at first so we went back to the infusion suite and Serenity got her port accessed. She wasn’t happy about it but it went quickly. When her labs came back ok we headed down to the Rapid Treatment Unit for the lumbar puncture. Serenity had been fasting all morning in preparation for it and she was starting to get a little fussy. (It was 1:00 p.m. by now.) Things went smoothly with her procedure, they gave her intrathecal methotrexate and when she woke up she ate a few crackers and then we went back upstairs to the oncology unit.
Some friends of ours were inpatient again with their 4 year old, so we stopped briefly to say hi to him then went back to the infusion suite for Serenity’s chemo. Her IV methotrexate was increased to 250 (mg squared, I think?) and she also got vincristine. The doctor we saw said she is doing really well with the high doses of chemo. She’s had a few minor side effects but nothing like we could be seeing.
On the way home she slept in the car and was a little bit fussy. She complained that her tummy hurt but they had given her some anti-nausea medication at the clinic so it must have been helping. At home she took a long nap, refused dinner, and fell back asleep quickly. She feels really warm to me but her temp was only 99 degrees so I’ll just keep an eye on it. She has been dozing fitfully but overall is doing pretty well.
I’m glad her visit was a relatively successful one. I can’t imagine how cranky I’d be if I had to wait until after 1pm to eat! Still praying!